International ME/CFS & FM Awareness Day
Why I feel so strongly about International ME/CFS & FM Awareness Day?
I don’t need to read the information that is on the poster about what ME is and how it affects people, This is because I am one of the people it has affected.
I was diagnosed with ME a little over four years ago, after a year of chronic tiredness and very vague untreatable symptoms just like the ones shown in the poster.
After a year of tests, eliminating everything from low Iron levels to Tuberculocious, I was finally given the diagnosis of having ME/CFS.
There is no miracle cure and no quick fix for ME, The advice I was given was to be more active when I feel tired, to rest when I have energy, It all sounded a little odd to me!
The hardest thing for me when I first got ME was having to give up my job in a primary school, I just could not function enough to get through the day as well as looking after my family and home, something had to give and this was really the only option.
I am so glad that ME is being highlighted today as normally it is such a little known subject. How can people with ME, expect anyone to understand just how it affects your day-to-day lives when very little is done to educate people on what ME actually is.
Most people when I say I have ME think I have MS, yuppie Flu or I am just making up the symptoms and being a bit of a drama queen. In the past some doctors have not even known what ME is!
In the future, I can only hope ME/CFS gets the awareness and research it deserves, They are so many people suffering out there with ME that are given little or no hope of getting rid of the debilitating Illness.
If reading this can help even one person to understand a little bit about ME and the symptoms, then that is a positive in my eyes and hopefully things will improve in the future and this illness will get the research it deserves.